H A P P Y N E W Y E A R !
It has been awhile since I’ve written here. I logged in and it warmed my heart to see the views by country. Again, I don’t have any answers for the best way to treat this condition or how to cope with it, but I will continue to be honest and share my journey in living with alopecia. I hope you had a very happy holiday season and I wish you lots of love and light in the new year… and most importantly, I hope you always remember that you are not alone in your struggles with alopecia.
It has been almost six months since I lost my hair and I admit, alopecia still fucking sucks, (I empathize!). BUT it has been a blessing in disguise. I hope you see a shift in your outlook on alopecia and are able to embrace the life changing experience. Six months ago, I’d cringe when people would say: ‘it’s just hair.’ I understand that comment is meant to be supportive, but personally I then felt guilty, like I was being vain for mourning something superficial. Sound familiar? Or it was also hard to hear: ‘So-and-so (insert famous actress) shaved her head for that movie and looked great.’ Again, I know intentions are well and they’re trying to be supportive, but we did not choose this new ‘do and unlike celebrities, we aren’t getting paid for it! My best advice: Cry as much as you need to, a person has the right to mourn any loss. However, if you are dwelling too much, try really hard to remind yourself that hair is just one small piece of your physical being. It does not define you. Just as much as your fingernails, or skin, or size or any other element of the physical body does not define you!
I haven’t mentioned this before, but when my daughter arrived six months ago, she had a very full, gorgeous head of dark hair. I would gladly give it all to her again. During this transformative period, anytime I feel sad about my hair, I remember my dad’s words: if someone asked if you’d trade all of your hair for two healthy babies, you’d do so without thinking twice. Without a doubt. My two healthy babies are at the top of my gratitude practice. I feel fortunate. I have alopecia areata. I chose to shave my head. I have hair, it’s just not a full head of hair right now. Besides one insensitive comment from a total stranger, I have not been bullied because I have this condition – just the opposite, I’ve felt an abundance of support and love. I think about children/teenagers that struggle with this disease that have alopecia totalis or alopecia universalis. These conditions alone are so difficult and isolating, then throw the cruelty of their peers on top of that. My heart breaks when I think of their pain and suffering. A great non-profit if you are helping a child cope with alopecia:
Here are some children’s books on alopecia and celebrating differences: Maddie: Teaching Tolerance With A Smile, Destiny’s Purpose: A Young Alpaca Living With Alopecia, Princess Alopecia, Introducing Hairietta Hairison – The One, The Only Me, The Girl With No Hair: A Story About Alopecia, Because of Anya, It’s Okay To Be Different, Everyone is Different: Why Being Different Is Great!, We’re Different, We’re the Same
My son was watching Sesame Street the other day and a song caught my attention: I Love My Hair. I looked it up and there’s a great story behind it: A Sesame Street Writer Pens “I Love My Hair” Song to Empower Daughter.
I searched ‘Sesame Street Hair’ and was surprised how many videos there are on the subject. I love that they’re teaching kids to celebrate their hair and their unique style, but also wish there was at least one video on kids with alopecia.
and one more, but yoga related…
Speaking of sesame…
A ritual that I’ve added to my day: Oil Pulling. It’s an ancient Ayurvedic practice for detoxification. Two of the many benefits include: a natural remedy for skin problems and reduces inflammation. I believe diet/lifestyle changes have been key in my hair regrowth and it’s possible oil pulling has been a big part of it. Worth a try? Take good care. XO