Tag Archives: Alopecia support



Alopecia areata and anxiety. One small spot or handfuls of hair falling out in the shower… so very traumatic and an instant source of stress and anxiety. Since it is inflammation of the skin, there’s also that soreness of the scalp that occurs before shedding, yet another source of stress and anxiety with the anticipation of a new spot appearing where it’s achy. I see my daughter scratching the back of her head now and then… and I can’t help but to feel sadness and guilt for passing this autoimmune disorder to her. However, I’m reminded that as difficult as this experience has been, it’s been a beautiful, transformative one as well. I know deep in my heart that my daughter and I will inspire others as we continue to choose to not suffer from this disease, but embrace it as our life’s journey.


“…a battle you know nothing about. Be kind. Always.”

It has been a little over a year and a half since I began wearing a wig. At first it was really fun… I had a bald/shaved head for almost a year and suddenly I had a bob. I started to feel like my old self. Then one day I received a lovely handwritten letter from a guest at work. She had taken the time to reach out as she noticed I was wearing a wig. She shared that two of her girlfriends were currently suffering from cancer and that she was praying for me and my babies. She ended the letter with a polite, ‘excuse me if I am wrong, but I had to let you know that you have been in my thoughts and prayers since I met you.’ I was very touched by this, but also didn’t know if and how I should respond. I decided to ask for my manager’s opinion…

I explained that I have alopecia areata and currently shave my head. I handed her the letter to read and sat awkwardly awaiting her response. After finishing, she looked up and said: “You know, if I were you, I’d think about getting a better wig.” I was stunned, like I had been punched in the gut. I was in shock and disbelief. I somehow composed myself and kept the tears from flowing and asked what made it look unnatural? I thought that would give her the chance to realize that her comment was rude and inappropriate. I gave her the opportunity to redeem herself. Instead, she looked up examining my wig and said: “Well, it’s the part… and it doesn’t move right… and there’s a shininess to it.” I could feel my face getting red, my heart racing, but took a breath and replied: “This is a new wig. It was $800 and human hair wigs are thousands of dollars. With two babies, this is what we can afford right now.” She could tell I was upset, but still no apology.

As you alopecians can imagine, this comment hurt deeply. It angered me and I lost all respect for her. I shrugged her off as unkind and miserable, oblivious to others’ feelings as I witnessed many other situations where she put people down. I wasn’t going to let it get to me. In the end, they were just words from an ignorant person. Fortunately, shortly after I was able to move on to a better place and had the opportunity to address her comments. I accepted her apology. I recommitted to being very open about this disease for not only myself, but for my daughter. In a way I am thankful for this incident because it truly made me stronger. If my daughter experiences anything like this, I will share my experience with her. Otherwise, moving forward and focusing on all of the wonderful, compassionate people that have only provided love and support.


I truly believe in the power of moving meditation – yoga! If you are struggling with anxiety and alopecia, I highly recommend the two videos by Dina Amsterdam: InnerYoga for Stress and Anxiety AM and PM found on Gaiam:


Take good care. XO

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4th trimester.

My baby yogi and I outside of Stanford Children’s Hospital after the NAAF Bay Area Children’s Alopecia Support Meeting.stanford My little girl and I had the honor of teaching a yoga class to the Children’s Alopecia Group of Northern California. Just recently, she was also diagnosed with alopecia areata. About a month ago, my daughter had an allergic reaction, which her doctors believe may have triggered her alopecia. I noticed her small spot, (about the size of a dime), on the back of her sweet little head. The pediatrician and dermatologist confirmed it. The patch has since grown to about the size of a silver dollar. Yesterday we were surrounded by other children with alopecia, their parents and some of their grandparents. A circle of support. All love. We met a dad who shaves his head so that he and his four year old son are twins. During our yoga class, his son was a very typical little boy and seemed to have zero issue with his alopecia. His dad told my husband that he refers to anyone bald as: ‘his people.’ We met older kids that are completely content with their hair loss, and we also met parents that admit that they struggle more than their children do. iyengar As you alopecians know, the autoimmune disease is incurable and although it is not life-threatening, it is life-changing. It is a condition that my daughter and I share, but are learning to choose not to suffer from. My hope is that we can teach our children the principles of wabi-sabi philosophy: not to view anything as flawed, but to always see and celebrate beauty in imperfection. There’s a saying that you should always do what scares you most… well, the thought of this photo shoot scared the sh*! out of me.  I won the SF scholarship and then almost chickened out because I recently shaved my head again.  But I really wanted my daughter to see this one day and truly know that hair is really only one small piece of the physical body and has nothing to do with beauty. It’s almost Alopecia Awareness Month and I’m committed to being open about this autoimmune disease, not for myself, but for both of my babies: 4th Trimester Bodies Project

As always, please know that you are not alone.



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“My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humor, and some style.”

Rest in Peace, Maya Angelou

Another favorite:  “We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.” To all the moms out there that are suffering from postpartum alopecia – it is so rough to lose your hair at any point in your life, but isn’t it especially hard when you’re also caring for your newborn? A friend sent me this beautiful note: The journey into motherhood is so wildly unique and such a beautiful transformation… maybe the excess shedding is a sign to make space for your new role. Joy and purpose are found in the challenges of life.

Eleven months ago, my autoimmune disorder felt out of control, but with small changes, I’ve seen major growth in a short period of time. However, where I’ve seen growth, I’ve also seen loss. One month ago I had a full head of hair. Then I noticed a small spot and in the last couple of weeks I’ve continued to shed hair in that same area, (in the back), where it all started. Immediately, I became fearful; what if it all falls out again?  I saw this and wanted to pass it along… to all that are struggling with alopecia, take good care and as always, please remember that you’re not alone! XO


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I’ve shared this one before: Lotus Pose on Two.

Six months later and the Seattle Seahawks win their first Super Bowl in franchise history! The same season the coach implements a mandatory yoga and meditation practice as part of their training program…

Russell Wilson July 29, 2013Photographed by Peter yang

Over the last six months, (as part of my home practice), I included Vrksasana. The benefits of this posture mainly focus energy to strengthen the lower body, but I started meditating on the asana as a representation of growth. This offered a powerful doorway inward. I’d imagine the roots of my hair getting stronger as I found my balance and strength in the grounding of the posture. I’d close my eyes and visualize beautiful redwoods, or a bodhi, banyan, magnolias or a specific oak tree I used to drive by everyday on my way to work. I’d focus on the vitality of those root structures and imagine my own roots strengthen with each breath. Six months ago, my autoimmune disease felt out of control, but with small changes, I’ve seen major growth in a short period of time. I truly believe in the power of moving meditation – yoga!

My journey of yoga teacher training ended today with a lovely graduation ceremony. I signed up for the program in the midst of my hair loss; seeking a little adventure and a way to take my mind off of it. My life has become so much richer in ways I could not have imagined. I am beyond grateful for my Yoga Tree teachers, new friendships, and sacred space created by this new community. I can’t express how much I’ve loved this experience… and I have alopecia to thank for it! Thank you all so very much for your love and support… from the bottom of my heart. XO

A few progress photos over the last few months and our Yoga Tree Graduation!


DSCF8361 DSCF8380 DSCF8403 DSCF8426DSCF8411

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First off…


H A P P Y  N E W  Y E A R !

It has been awhile since I’ve written here. I logged in and it warmed my heart to see the views by country. Again, I don’t have any answers for the best way to treat this condition or how to cope with it, but I will continue to be honest and share my journey in living with alopecia. I hope you had a very happy holiday season and I wish you lots of love and light in the new year… and most importantly, I hope you always remember that you are not alone in your struggles with alopecia.


It has been almost six months since I lost my hair and I admit, alopecia still fucking sucks, (I empathize!). BUT it has been a blessing in disguise. I hope you see a shift in your outlook on alopecia and are able to embrace the life changing experience. Six months ago, I’d cringe when people would say: ‘it’s just hair.’ I understand that comment is meant to be supportive, but personally I then felt guilty, like I was being vain for mourning something superficial. Sound familiar? Or it was also hard to hear: ‘So-and-so (insert famous actress) shaved her head for that movie and looked great.’ Again, I know intentions are well and they’re trying to be supportive, but we did not choose this new ‘do and unlike celebrities, we aren’t getting paid for it! My best advice: Cry as much as you need to, a person has the right to mourn any loss. However, if you are dwelling too much, try really hard to remind yourself that hair is just one small piece of your physical being. It does not define you. Just as much as your fingernails, or skin, or size or any other element of the physical body does not define you!


I haven’t mentioned this before, but when my daughter arrived six months ago, she had a very full, gorgeous head of dark hair. I would gladly give it all to her again. During this transformative period, anytime I feel sad about my hair, I remember my dad’s words: if someone asked if you’d trade all of your hair for two healthy babies, you’d do so without thinking twice. Without a doubt. My two healthy babies are at the top of my gratitude practice. I feel fortunate. I have alopecia areata. I chose to shave my head. I have hair, it’s just not a full head of hair right now. Besides one insensitive comment from a total stranger, I have not been bullied because I have this condition – just the opposite, I’ve felt an abundance of support and love. I think about children/teenagers that struggle with this disease that have alopecia totalis or alopecia universalis. These conditions alone are so difficult and isolating, then throw the cruelty of their peers on top of that. My heart breaks when I think of their pain and suffering. A great non-profit if you are helping a child cope with alopecia:


Here are some children’s books on alopecia and celebrating differences: Maddie: Teaching Tolerance With A SmileDestiny’s Purpose: A Young Alpaca Living With AlopeciaPrincess AlopeciaIntroducing Hairietta Hairison – The One, The Only MeThe Girl With No Hair: A Story About AlopeciaBecause of AnyaIt’s Okay To Be DifferentEveryone is Different: Why Being Different Is Great!We’re Different, We’re the Same


My son was watching Sesame Street the other day and a song caught my attention: I Love My Hair. I looked it up and there’s a great story behind it:  A Sesame Street Writer Pens “I Love My Hair” Song to Empower Daughter.

I searched ‘Sesame Street Hair’ and was surprised how many videos there are on the subject. I love that they’re teaching kids to celebrate their hair and their unique style, but also wish there was at least one video on kids with alopecia.

and one more, but yoga related…

Speaking of sesame…

sesame oil

A ritual that I’ve added to my day: Oil Pulling. It’s an ancient Ayurvedic practice for detoxification. Two of the many benefits include: a natural remedy for skin problems and reduces inflammation. I believe diet/lifestyle changes have been key in my hair regrowth and it’s possible oil pulling has been a big part of it. Worth a try? Take good care. XO


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yum. yum. yum.


“I am not my_____.”

A friend posted this on Facebook and it really resonated with me. The What I Be Project is a portrait photography series that is all about honesty. Each person that takes part is extremely courageous. They are putting their insecurities out in the open, and exposing a side of themselves that nobody has seen before. By stating “I am not my_____,” they are claiming that they do in fact struggle with these issues, but it does not define who they are as a person.

Besides one photo, I haven’t shared any more because up until now I just wasn’t ready. Today I have the courage to share because I felt an amazing emotional release. Our yoga teachers have said numerous times that one day during our time together: you’ll find yourself crying on the mat and you may not know why. Yoga stirs up emotion and creates space for healing. This morning I attended a super intense vinyasa class that truly marked a shift for me. While in savasanaour teacher reminded us that we always have a choice. We can allow for the hardships in our lives to take over and define us… and we can let them take a toll on our health, well being, relationships with ourselves and others… OR we can roll with them. Always a choice. (Thank you Mark Morford). So there I was in savasana dripping with sweat and tears. Not a sobbing cry of sadness, but gentle tears of release that flowed lightly out of my eyes… and I felt at peace.

In the spirit of the What I Be Project: I am not my alopecia. I am a partner, mami, daughter, sister, granddaughter, niece, cousin, friend, designer, yogini… all roles that do not require hair! I am not my alopecia. I wrote it on my palm and took a photo this evening. As I look at these photos taken over the last 4 months I no longer attach any emotion. A few months ago, when I looked at the first shot, it was a very difficult thing to see and accept. Now, I look at the progress in such a short period of time and I think it’s really fascinating… cool in a way how it fell out in certain areas and remained in others.


I’m not quite to the point where I feel completely at ease in public without a headscarf or wig, but I know that day will come. And speaking of wigs… I wasn’t open to wearing one at first, but realized how great they are to change up the hat/headscarves. The downside of alopecia: you lose your hair. The upside: fun with wigs – Halloween is one of my favorite holidays – there’s always a bright side! My perspective has been shaped by the support of my solid family and friends (old + new!), and yoga. I am forever grateful for them.


The H E A R T . . .


In the yoga tradition, the chakras are junction points between the physical body and consciousness. The human body contains seven major chakras that are aligned in a column from the base of the spine to the top of the head. The ancient sages envisioned the chakras as wheels or energy centers, and each one is associated with a specific vibration. The heart chakra, known in Sanskrit as the anahata, is the energy center located in the area of our physical heart. This is the center in the body where love and spirit are joined. It is our heart that aches or fills with love, that feels compassion and trust…that seems empty or overflowing. When the energy in the heart chakra is flowing freely, we feel deeply connected to all beings and we experience an abundance of love, peace, and acceptance. When the heart center is blocked, we tend to feel isolated and fearful, unable to trust and receive the blessings of life.


We can open and clear the heart chakra with a simple meditation practice using the Sanskrit mantra: yum – the healing sound that resonates with the heart center. Begin by sitting cross-legged, (or if you prefer to rest on your back…whatever is most comfortable!). Close your eyes and take in a few deep breaths. Begin to let go of any thoughts about the past and any expectations for the future. Gently bring your thoughts in on the present moment by putting your attention on the area of your heart and take another deep inhalation. As you exhale, say the mantra yum in one long syllable. Feel the sensations in your body and feel the energy flowing effortlessly from the base of your spine through your heart chakra. Visualize the energy as a beautiful green light that nurtures and bathes your heart in pure love, clearing away the residue of the past. Repeat the mantra yum until you feel infused with a feeling of peace and safety.

In yoga, poses that open up the front body such as backbends allow the heart to open. A friend shared this recently and it’s so beautiful (thank you Jennie!):

Ustrasana (Camel) is a wonderful heart opening pose. Practice this pose to help heal and open the heart center. Our heart is the entryway to our soul and it cannot be fully opened and activated until we integrate the light and dark within us. It is in our heart where we learn to embrace and love our vulnerabilities so we can transcend the smallness of our human ego. When we are fully open, we remember our true nature and allow the energy of creation to flow freely through us. Everyday is an opportunity to share the compassion and love that emanates from your big beautiful heart! XOXO


Yum Yum Yum Take good care. XO


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Inspiring: Angelica Galindez


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