We are a rare pair of mother-daughter alopecians. Alopecia is an incurable autoimmune condition that we are learning to choose not to suffer from.
I am the leader of the NAAF Stanford Children’s Alopecia Group. Our mission: to provide children and anyone living with alopecia, their families and their friends, a safe, comfortable and trusting environment in which to share their personal experiences with this challenging condition. Thanks to the caring dermatologists and nurses at Stanford Children’s Health | Lucile Packard Children’s Hospital that provide a healing space; the group strives to enhance self-esteem, self-confidence, and sense of community, while increasing their capacity to effectively manage the various aspects of living with alopecia. My hope is that we can teach our children the principles of wabi-sabi philosophy: not to view anything as flawed, but to always see and celebrate beauty in imperfection. I hope you are able to find support, inspiration and hopefully it’ll help soothe your soul knowing that you are not alone in this crazy world of living with alopecia. I would love to hear your story, suggestions re: alternative medicine/treatments, nutrition, meditation, yoga, how you’ve coped or whatever you feel comfortable sharing here. If you would like to connect: firstname.lastname@example.org
“We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.” – Maya Angelou. Gratitude to 4th Trimester Bodies Project for celebrating all aspects of motherhood.