About

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We are a rare pair of mother-daughter alopecians. Alopecia is an incurable autoimmune condition that we are learning to choose not to suffer from.

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I am the leader of the NAAF Stanford Children’s Alopecia Group. Our mission: to provide children and anyone living with alopecia, their families and their friends, a safe, comfortable and trusting environment in which to share their personal experiences with this challenging condition. Thanks to the caring dermatologists and nurses at Stanford Children’s Health | Lucile Packard Children’s Hospital that provide a healing space; the group strives to enhance self-esteem, self-confidence, and sense of community, while increasing their capacity to effectively manage the various aspects of living with alopecia. My hope is that we can teach our children the principles of wabi-sabi philosophy: not to view anything as flawed, but to always see and celebrate beauty in imperfection. I hope you are able to find support, inspiration and hopefully it’ll help soothe your soul knowing that you are not alone in this crazy world of living with alopecia. I would love to hear your story, suggestions re: alternative medicine/treatments, nutrition, meditation, yoga, how you’ve coped or whatever you feel comfortable sharing here. If you would like to connect: naaf-stanford-childrens-support-group@googlegroups.com

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“We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.” – Maya Angelou. Gratitude to 4th Trimester Bodies Project for celebrating all aspects of motherhood.

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4 responses to “About

  1. Hello!
    This is Molly Vazquez
    (Author of) Alopecia & Wellness: HOW I GOT MY HAIR BACK TREATMENT FREE. {Available on Amazon}

    You are absolutely right about your body being in a state of imbalance (dis-ease)…in fact every body that is unhealthy is in a state of imbalance. The truth is that doctors are treating alopecia topically through the head just because hair is missing. However, I took another route and figured since no one is getting any results from treating it on an ‘outer’ physicality; What made most sense was to heal my body from the ‘inside’ out. I changed my whole lifestyle from unhealthy to healthy…completely cleaning up my body and in two years I had all of my hair back (I now have to get my hair thinned every few weeks!) I wrote a book on how I got my hair back so anyone can easily follow exactly what I did to achieve such hairy results (haha).

    Molly

    website: alopeciaandwellness.com

    Email: alopeciaandwellness@gmail.com

  2. It is a tough disease, but more so for a woman. I think you’re doing exceptionally well and I applaud your attitude. It’ll be an inspiration for any woman reading your blog!

  3. Tara

    Hi there! I just found your blog as I was searching for other women with alopecia after having a baby! I’ve had alopecia since I was young, but it was only ever a few small patches. About 4 months after having my son, the hair on my head started thinning. It wasn’t the typical spots I’d had before so I assumed it was just postpartum hair thinning, but it kept thinning more and more and by around 6 months I had lost basically all of it! I’m now 11 months postpartum and I have lost all the hair on my body. I would love to connect with you to see how your journey has been lately. I appreciate you writing about your experience!

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